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myPotential

Resources

Community organisations, educational material, and independently operated apps for people with POTS.

This is a starting point for learning and connecting. Each organisation and app is responsible for its own information, products, privacy practices, and terms.

Community and education

  • Dysautonomia International — regional, online, and virtual support groups for people with dysautonomia and their caregivers.
  • Standing Up to POTS — POTS information, advocacy, research, and support resources, including material for school and college.
  • PoTS UK — guides about living with PoTS, with material for young people, carers, education, work, and travel.

Apps used in the POTS community

People in the POTS community use a range of apps to log symptoms, keep a record of activity, or set personal device thresholds. The apps below are independent of myPotential. We do not create, operate, review, or endorse them; availability, features, pricing, and privacy practices can change.

  • POTSie — a POTS-focused tracking app available for iOS and Android.
  • TachyMon — an iPhone and Apple Watch app that lets people set heart-rate thresholds and review recorded events.
  • Visible — a symptom and pacing-tracking app. Visible notes that people with POTS use its app, although it is primarily designed for people with Long Covid and ME/CFS.

Know an app that could be useful to others? Let us know.

Neither myPotential nor these links provide medical advice. Speak with a clinician before starting or changing an exercise programme, or when deciding whether an app or device is appropriate for you.